I haven’t blogged in 3 years. I know why. I didn’t want to deal with what we were dealt. We stopped going to the apraxia walks last year because I wanted us to move past it. Selfish perhaps but I was procrastinating my feelings for a long time.

Fast forward to first grade.  Pre K stunk.  Luke was in a class that was understaffed and wasn’t able to help his needs.  We pulled him in April.  Kindergarten went very well, his teacher was awesome and determined and patient and communicative.  We were very lucky, for 9 months the stress was at its lowest level, Luke seemed happy, almost.

Now, we are in first grade, 3 weeks in and he’s been sent home 4 times and suspended once. The staff hasn’t been trained on how to deal with all things Luke.  The principal hates me.  We have a lawyer involved.  Being treated as a “bad kid” rather than one with a disability.  Stress is back up to an incredibly high level.  The calls from school are taking a toll on us as a family, we both work so leaving to pick him up us not too easy depending on the day.  Emergency IEP meetings.  FBA done by autism consultant per my request.  Knots in my stomach every school day waiting for a call that says he was swearing or hitting his aide or throwing his shoes.  Sister has said multiple times “I wish Luke didn’t have autism.”  Pulled strings to get an appointment with his developmental pediatrician to see if she has other recommendations.  Luke told me he hopes she can help him.  I will do everything in my power to as well, buddy.