Luke’s talking up a storm, it’s truly amazing.  I never thought the day would come but he’s saying “Go get milk” and “so cool” – stuff like that!  His teacher sent me a note saying the he should be in general ed next year, already!  I’m so proud of him, he has worked so hard and come so far.  The feeling inside as his mom is indescribable.  I have such an amount of love and admiration, and he’s only 3.

His behavior isn’t great lately….he has this shrill high pitch scream when he’s mad or doesn’t get what he wants.  We try to ignore but sometimes it’s just not possible.  It scares his little sister.  Heartbreaking.

We were so desperate to help Luke sleep that we gave clonidine a shot.  It didn’t work.  In fact, it made his sleeping even worse.  I believe he was having nightmares, he would wake up screaming and thrashing.  He was sweaty.  We gave it a week and that’s what happened, and immediately stopped.  He is sleeping terrible but at least I know he’s more peaceful and not having bad dreams.  So at this point we have come to the conclusion that he will never sleep and we will be tired for the rest our lives as well.