Something that infuriates me?  Bragging about a kid because he’s walking.  Or talking.  Anything developmental.  It’s something that I never would have even thought about before having Luke, but now when I see people posting on Facebook about how smart their kid is because they’re walking at 10 months…it literally drives me mad.  It’s ignorance, I understand that, but it still makes me so mad.  Today it was one of my best friends.  We don’t see each other often, literally every couple years, so she has no idea about Luke’s struggles, and she doesn’t understand that bragging about her kid brushing his teeth has nothing to do with how smart he is.

Being a mom of a kid that started talking at 3.5 gives me the right to be mad, right?  I don’t care if it does, I’m mad anyways. I really should just remember that my friend, along with all other parents of typical kids, are just bragging because they love their kid.  And they’re proud.  But today I am too crabby to give anyone the benefit of the doubt.

Luke’s talking up a storm, it’s truly amazing.  I never thought the day would come but he’s saying “Go get milk” and “so cool” – stuff like that!  His teacher sent me a note saying the he should be in general ed next year, already!  I’m so proud of him, he has worked so hard and come so far.  The feeling inside as his mom is indescribable.  I have such an amount of love and admiration, and he’s only 3.

His behavior isn’t great lately….he has this shrill high pitch scream when he’s mad or doesn’t get what he wants.  We try to ignore but sometimes it’s just not possible.  It scares his little sister.  Heartbreaking.

We were so desperate to help Luke sleep that we gave clonidine a shot.  It didn’t work.  In fact, it made his sleeping even worse.  I believe he was having nightmares, he would wake up screaming and thrashing.  He was sweaty.  We gave it a week and that’s what happened, and immediately stopped.  He is sleeping terrible but at least I know he’s more peaceful and not having bad dreams.  So at this point we have come to the conclusion that he will never sleep and we will be tired for the rest our lives as well.